Thursday, December 18, 2008

Where We Are, And Where We Need To Be...

Today, John needed 2 units of blood and a pack of platelets. He is ballooning up full of fluids. His ankles and hands are very swollen. We have been propping them up and it seems to be helping. It's kind of hard for him to get up and walk around the unit with low energy so he can't get the fluid out that way just yet. They might throw in some lasix in the next week if it gets too bad. His counts are dropping quickly; his white blood cells today were at 0.26 and he had 7,000 platelets. When I got there this morning he was waiting for me to get off the elevators he said it really wore him out to get there. While he was there he looked at the blog and checked email and was ready for a nap.

Dr. Sobecks came in this afternoon to talk about where we are with treatment and what the next steps will be. We really need to get him through this round of treatment and hope and pray he doesn't develop a severe infection, as well as the graft vs host disease doesn't come back, and the major thing is that he needs to get into remission with this chemo and stay in it.

If he gets any of these things they can be life threatening or they can be treated successfully and we move on to transplant. He plans to not get them or if he does get them he will beat them. Once he is cleared of any of these possible complications he will need some pre-transplant testing to check his heart, kidney etc to make sure he can tolerate the chemo leading up to transplant. Dr. Sobecks is looking at possibly getting him set for transplant if all goes well by mid to late January. He will have a repeat bone marrow biopsy in 7-10 days to see if the marrow is empty and hopefully not housing any stray Leukemia cells.

Chemo will end tonight around 6:30 or 7. The next step is to get him to his lowest point and see how long it takes his body to recover from this round of treatment. We just need to hope and pray that nothing happens as far as infections, graft vs host disease or the leukemia doesn't go into remission.

I know that is a lot of information and not the most uplifting. We all know what a fighter, strong, and stubborn man John is. He has the most amazing attitude towards all of this. It is unbelievable. If anyone can do this for the third time it is him. I just wish he didn't have to because it kills me to see him have to do this again.

He called me last night to tell me Vegas had a foot of snow. I was half asleep so I thought I was dreaming. I told my Dad this morning and he said Oh no he is delirious because of a fever. I turned on the news and sure enough Vegas had snow. I guess you never know with this crazy weather. Talk to you all soon.

4 comments:

Anonymous said...

John & Jessica - Please know that all of us are praying and pulling for John to beat this thing once and for all. Good luck and Good bless.
Ray & Chris Kovacs & daughters
PS - Chris made sure Jeremy ordered some XL Buzzstrong bands for those of us that are above average sizewise. Ray

Anonymous said...

Uh, that last one was supposed to be God bless - damn small keys on the keyboard.

Unknown said...

John -

Was just able to catch up on the latest unfolding of the story here today. Stay strong my friend. We've just been on this journey ourselves and know the daily trials that you're going through. We're all pulling for you and you remain in our hearts and prayers.

- Michael Azzano

Anonymous said...

John and Jessica,

You are in our thoughts and prayers during this difficult time.

Congrats on the twins!!

Charlie and Lyndsay Severino