John has been feeling a little better today. He is still extremely tired and worn out. His skin biopsy came back as dermatitis; but the oncologist, nurses, myself and John all know that it is graft vs host disease (gvh). His oncologist who is on service now (he's had him in the past) says it is grade 4 gvh. The steroids are definitely helping it isn't spreading as much and is not as inflamed as it was. He still has a long way to go to get rid of the blisters and for his skin to heal. His eyes have been bothering him and seem to be worse today we believe that it is in eyes now. He is getting eye drops and the steroids will also treat that as well. His kidney function levels were elevated somewhat today if they continue to go up they might have to put him on a dose of 1 of the anti rejection meds he was on. He doesn't need to get gvh of his kidney since many of you know he only has 1 to work with. We will see how his levels do in the next coming days.
His white blood cells are starting to come up so we will see what they are producing in the next few days; there are still to few to tell at this point. If they are producing leukemia cells he will need another round of chemo before he can get the chemo prior to transplant.
He has changed rooms. The nurses feel it would be better if he was across from the nurses station due to him being unsteady on his feet and at times he likes to try things on his own before thinking. He also still out of it as he calls "loopy and not quite all there". It is much better for him, nurses and staff to keep a eye on him until he starts feeling better. He really misses his dogs he keeps dreaming they are laying next to him and he starts to pet his legs. That's all for tonight will update you all again tomorrow.
His white blood cells are starting to come up so we will see what they are producing in the next few days; there are still to few to tell at this point. If they are producing leukemia cells he will need another round of chemo before he can get the chemo prior to transplant.
He has changed rooms. The nurses feel it would be better if he was across from the nurses station due to him being unsteady on his feet and at times he likes to try things on his own before thinking. He also still out of it as he calls "loopy and not quite all there". It is much better for him, nurses and staff to keep a eye on him until he starts feeling better. He really misses his dogs he keeps dreaming they are laying next to him and he starts to pet his legs. That's all for tonight will update you all again tomorrow.
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